STRESSORS IN LEPROSY WITH DISABILITY: A SYSTEMATIC REVIEW
Abstract
Background: Psychological pressure on leprosy sufferers can be triggered by changes in individual health conditions that can cause stress. The stress experienced by leprosy sufferers can be reduced by identifying the causes of stress, to determine the right efforts to deal with psychological problems in leprosy sufferers. Objective: This systematic review aims to determine the stressors in leprosy patients with disabilities. Design: Database search includes Google Scholar, PubMed, and Researchgate from 18-21 November 2022 with the keywords Leprosy, disability, and stressor. The criteria for the selected articles are published in 2018-2022 with full text, in Indonesian and English. the Joanna Briggs Methodology model was used to analyze 15 selected articles to find the main themes in the preparation of the Qualitative Systematic Review. Result: the results of the analysis of the articles that have been carried out show that the cause of stress in leprosy sufferers, there are three main themes identified, namely self-stigma as a psychological aspect, disability as a physical aspect, and public stigma as a stressor in a social aspect. Conclusion: the findings show that the causes of stress in leprosy sufferers can come from psychological, physical, and social aspects that affect leprosy sufferers. this makes the three main themes that have been identified to help lepers to reduce stress.References
Aditya, R. S. (2020). Eksplorasi Koping Aktif Pada Penderita Kusta : a Qualitative Method. Media Keperawatan: Politeknik Kesehatan Makassar, 11(2), 22. https://doi.org/10.32382/jmk.v11i2.1620
Ariani, T., Gustia, R., Yenny, S. W., Anum, Q., Akhyar, G., Asri, E., Izrul, I., Raflis, Y., Asri, R. C., Mardhiati, & Yolanda, R. P. (2019). Intervensi Menghilangkan Stigma dan Diskriminasi Kusta di Puskesmas Pauh Kamba, Padang Pariaman. Warta Pengabdian Andalas, 26(1), 16–22.
Arisal, Agustang, A., & Syukur, M. (2020). Diskriminasi Sosial Anak Penderita Kusta di Kota Makassar. Phinisi Integration Review, 3(2), 297–304.
Correia, J. C., Golay, A., Lachat, S., Singh, S. B., Manandhar, V., Jha, N., Chappuis, F., & Beran, D. (2019). “If you will counsel properly with love, they will listen”: A qualitative analysis of leprosy affected patients’ educational needs and caregiver perceptions in Nepal. PLoS ONE, 14(2), 1–15. https://doi.org/10.1371/journal.pone.0210955
Couto Dal Secco, R. G., França, K., Castillo, D., AlHarbi, M., Lotti, T., Fioranelli, M., & Roccia, M. G. (2017). A synopsis of the history of Hansen’s disease. Wiener Medizinische Wochenschrift, 167, 27–30. https://doi.org/10.1007/s10354-017-0590-2
Dadun, D., Van Brakel, W. H., Peters, R. M. H., Lusli, M., Zweekhorst, M. B. M., Bunders, J. G. F., & Irwanto. (2017). Impact of socio-economic development, contact and peer counselling on stigma against persons affected by leprosy in Cirebon, Indonesia - a randomised controlled trial. Leprosy Review, 88(1), 2–22.
Dako-Gyeke, M. (2018). Courtesy stigma: A concealed consternation among caregivers of people affected by leprosy. Social Science and Medicine, 196(October), 190–196. https://doi.org/10.1016/j.socscimed.2017.11.030
Dako-Gyeke, M., Asampong, E., & Oduro, R. (2017). Stigmatisation and discrimination: Experiences of people affected by leprosy in Southern Ghana. Leprosy Review, 88(1), 58–74.
Dinas Kominfo Jatim. (2021). Infografis. http://jatimprov.go.id/read/materi/infografis
Efendi, F. (2019). Systematic Review. In Systematic Review (Vol. 94, Issue 3).
Govindharaj, P., Srinivasan, S., & Darlong, J. (2018). Quality of Life of People Affected with Leprosy Disability Living in Purulia , International Journal of Health Sciences and Research Quality of Life of People Affected with Leprosy Disability Living in. 8(February), 221–225.
Govindharaj, P., Srinivasan, S., Darlong, J., Mahato, B., & Acharya, P. (2018). A new instrument to measure leprosy internalised stigma: The leprosy internalised stigma scale (LISS). Leprosy Review, 89(3), 242–255.
Grzybowski, A., Sak, J., Pawlikowski, J., & Nita, M. (2016). Leprosy: Social implications from antiquity to the present. Clinics in Dermatology, 34(1), 8–10. https://doi.org/10.1016/j.clindermatol.2015.10.009
Gunnara, H., Yuliyana, R., Daswito, R., Juwita, R., & Sitanggang, H. D. (2020). Studi Kualitatif Keberadaan Penyakit Kusta di Desa Dendun Kecamatan Mantang Kabupaten Bintan. Jurnal Kesehatan Teroadu, 11, 84–93.
Hidayat, M., Irawati, D., & Waluyo, A. (2020). Phenomenology Study: Community Perception Of Lush Disease In The Working Area Of Puskesmas Talango, 2020. STRADA Jurnal Ilmiah Kesehatan, 9(2), 1463–1473. https://doi.org/10.30994/sjik.v9i2.487
Irham, F., Fauji, A., Astuti, P., & Prima, A. (2022). Faktor-Faktor Yang Mempengaruhi Kejadian Kecacatan Pada Pasien Kusta: Literature Review. Jurnal Keperawatan Muhammadiyah, 7(1), 3–6
Jatimi, A., Nenobais, A. N., Jufriyanto, M., Heru, M. J. A., & Yusuf, A. (2020). Mekanisme dan Strategi Mengurangi Stress pada Pasien Kusta. Indonesian Journal of Community Health Nursing, 4(1), 41. https://doi.org/10.20473/ijchn.v4i1.17540
Jatimi, A., Yusuf, A., & Andayani, S. R. D. (2020). Leprosy Resilience with Disabilities Due to Illness: A Qualitative Study. Indonesian Nursing Journal of Education and Clinic (Injec), 5(2), 95. https://doi.org/10.24990/injec.v5i2.298
Jaya Maulana, & Arun, S. (2019). Faktor Risiko Kecacatan Pada Penderita Kusta Di Wilayah Kerja Puskesmas Kota Pekalongan Tahun 2017-2018. Jurnal Kesehatan Pena Medika, 9(2), 10. http://jurnal.unikal.ac.id/index.php/medika/article/view/880
Jufriyanto, M., Yusuf, A., & Mundakir, M. (2020). The Psychosocial Experiences in Ex-Leprosy Patients: A Qualitative Study. STRADA Jurnal Ilmiah Kesehatan, 9(2), 733–742. https://doi.org/10.30994/sjik.v9i2.380
Muhammad Najmuddin. (2021). Stigma Terhadap Penyakit Kusta: Tinjauan Komunikasi Antarpribadi. Al-Din, 60–73.
Nasir, A., Yusuf, A., Listiawan, M. Y., & Makhfudli, M. (2022). The life experience of leprosy families in maintaining interaction patterns in the family to support healing in leprosy patients in Indonesian society. A phenomenological qualitative study. PLoS Neglected Tropical Diseases, 16(4), 1–17. https://doi.org/10.1371/journal.pntd.0010264
Netherlands Leprosy Relief. (2018). menghentikan penularan kusta. http://web.nlrindonesia.or.id/main/kpp1
Nugraheni, R. (2016). Analisis Konsep Diri Terhadap Kualitas Hidup Penderita Kusta Yang Mengalami Kecacatan Di Rumah Sakit Kusta Kediri. Preventia : The Indonesian Journal of Public Health, 1(2), 164. https://doi.org/10.17977/um044v1i2p164-173
Rai, S. S., Irwanto, Peters, R. M. H., Syurina, E. V., Putri, A. I., Mikhaknova, A., Naniche, D., & Zweekhorst, M. B. M. (2020). Qualitative exploration of experiences and consequences of health-related stigma among indonesians with HIV, leprosy, schizophrenia and diabetes. Kesmas, 15(1), 7–16. https://doi.org/10.21109/kesmas.v15i1.3306
Rismayanti, R., Tandirerung, J., Dwinata, I., & Ansar, J. (2017). Faktor Risiko Kejadian Kecacatan Tingkat 2 Pada Penderita Kusta. Media Kesehatan Masyarakat Indonesia, 13(1), 51. https://doi.org/10.30597/mkmi.v13i1.1581
Rodrigues Nóbrega Videres, A., Albino Simpson, C., Parreira Mendes, F. R., Cordeiro de Oliveira, R. de C., de Oliveira Adário, K. D., Fernandes Pimenta, E., & Duarte de Sá, L. (2016). Manifestations of Stigma and Prejudice Informed by Treated Lepers. International Archives of Medicine, 1–10. https://doi.org/10.3823/1918
Sa’diyah, H., & Arsi, A. A. (2022). Diskriminasi Sosial Pada Eks Penderita Kusta Di Lingkungan Masyarakat Hanifatus Sa’diyah, Antari Ayuning Arsi. 11(2), 182–191.
Saputri, Y. P., Luthviatin, N., & Kependudukan, B. (2017). Hubungan antara Dukungan Sosial Keluarga dengan Kepatuhan Minum Obat Penderita Kusta (Studi di Kecamatan Puger dan Balung Kabupaten Jember) The Relationship between Family Social Support with Medicine Compliance of Leprosy Patients (Study in Puger and Bal. E-Jurnal Pustaka Kesehatan, 5(3), 549–556.
Sekarningrum, B., & Yunita, D. (2017). Social Exclusion and Impoverishment of Lepers. 6(1), 387–394.
Siregar, T., & Ratnawati, D. (2018). Pengalaman Keluarga Merawat Penderita Kusta Dalam Menghadapi Stigma Masyarakat Di Kelurahan Limo Depok - Jawa Barat. Jurnal Ilmiah Keperawatan Indonesia [JIKI], 1(2), 63. https://doi.org/10.31000/jiki.v1i2.413
Sodik, M. A. (2016). Leprosy Patients in public perception: A qualitative study of patient confidence (dis) in the Community (Penderita Kusta dalam persepsi masyarakat: Sebuah studi kualitatif tentang kepercayaan diri pasien di Masyarakat). Journal of Global Research in Public Health, 1(2), 99–106.
Syahrul, A. &. (2019). Pengaruh Stigma Masyarakat terhadap Perilaku Pasien Kusta dalam Mencari Pengobatan: Sebuah Tinjauan Sistematis. 173–181. https://doi.org/10.26699/jnk.v6i1.ART.p173-181
Utami, R., Haryanto, J., & Sajidin, M. (2017). Path analysis of the factors that influence the prevention of leprosy clients depression in leprosy hospital Sumberglagah Mojokerto, East Java, Indonesia. International Journal of Science and Research, 6(6), 431–435. https://doi.org/10.21275/ART20174228
Van’T Noordende, A. T., Aycheh, M. W., & Schippers, A. P. (2020). An exploration of family quality of life in persons with leprosy-, lymphatic filariasis- And podoconiosis-related disabilities and their family members in Ethiopia. Transactions of the Royal Society of Tropical Medicine and Hygiene, 114(12), 1003–1012. https://doi.org/10.1093/trstmh/traa090
Van, A. T., Id, N., Aycheh, M. W., & Schippers, A. (2020). The impact of leprosy , podoconiosis and lymphatic filariasis on family quality of life : A qualitative study in Northwest Ethiopia. 1–17. https://doi.org/10.1371/journal.pntd.0008173
Van Netten, W. J., Van Dorst, M. M. A. R., Waltz, M. M., Pandey, B. D., Aley, D., Choudhary, R., & Van Brakel, W. H. (2021). Mental wellbeing among people affected by leprosy in the Terai region, Nepal. Leprosy Review, 92(1), 59–74. https://doi.org/10.47276/lr.92.1.59
Van Wijk, R., van Selm, L., Barbosa, M. C., van Brakel, W. H., Waltz, M., & Puchner, K. P. (2021). Psychosocial burden of neglected tropical diseases in eastern Colombia: an explorative qualitative study in persons affected by leprosy, cutaneous leishmaniasis and Chagas disease – ERRATUM. Global Mental Health, 8. https://doi.org/10.1017/gmh.2021.31
Widya, T. N., Adi, M. S., & Martini. (2019). Gambaran Faktor Risiko Kecacatan Pada Penderita Kusta. Jurnal Kesehatan Masyarakat (e-Journal), 7(3), 54–59.
Williams, A., Thomas, E. A., Bhatia, A., & Samuel, C. J. (2019). Study of clinical spectrum and factors associated with disabilities in leprosy: A ten year retrospective analysis. Indian Journal of Leprosy, 91, 37–45.
Yudanagara, B. B. H. (2020). Dampak Psikososial Diskriminasi pada Mantan Penderita Kusta. Jurnal Psikologi: Media Ilmiah Psikologi, 18(1), 1–8.
Zaki, S. M., Kotb, F. N., & Mohammed, A. A. (2020). Assessment of Self-Esteem and Coping Strategies among Leprotic Patients. 7(2), 109–115. https://doi.org/10.12691/ajnr-7-2-2
Zamparoni, V. (2017). Leprosy: Disease, isolation, and segregation in colonial Mozambique. Historia, Ciencias, Saude - Manguinhos, 24(1), 1–27. https://doi.org/10.1590/S0104-59702016005000028